School

Tuesday Kiana starts school at Mutual Elementary. She will now be attending an inclusive Pre-K program which is a Pre-K that has special needs and regular students. We are looking forward to starting school and meet her new teachers.

T-Ball

Saterday was Kiana's last T-ball game. She had a lot of fun this season although she spent more time climbing the backstops and fences than she did playing actual t-ball, but its ok as long as she had fun doing something right. i'll post pics as soon as i can

No More School!!

Kiana is done with school as of tomorrow. She has grown so much over the last year of school. she is talking more and more. She is also talking more clearly now. She loves to sing her favorites are: itsy bitsy spider, tomorrow,it's raining, old mcdonald, and twinkle twinkle. She also loves trying to do puzzles and to color. Next year she will be attending Sunderland Elementary school in an inclusive pre-school, which means that she will be in a class with special needs and "normal" peers. We are still trying to get her to use the potty, but she keeps insisting on wearing a diaper at home and refuses to sit on the potty unless it's right in front of the t.v.

my lil monkey

Kiana is still quite the little monkey. She still isn't potty trained and she's almost 5. it is so fustrating and irratating that she won't tell us that she has to go potty. Her last day of school is Tuesday so i'll start working more on it then, maybe it will be easier. I am tired of having to buy diapers for her and she's out growing them. other than that Kiana is doing well.She loves putting together puzzles and playing with her uncle zachary.

to potty train or not to potty train that is the question

Actually it's not much of a question at all. i know that she needs to be potty trained, but we have brand new carpet in the trailer we're renting and not really too keen on having her pee all over the floor....I also don't particularly like having her potty in the middle of the living room either. we are working on it though and she does really well at school but they have the time and patients to take her to the potty every 30 mins.

finally an update on my lil monkey

ok, so i know a lot of you have been wondering what's been going on with Kiana. The 26 of march Kiana went in for her 1st MRI. we left here after we took Aelita to school at 8:40am and stopped at k-mart to get her some things to do while we waited as well as a popcicle and then stopped at walmart to get some jello and another popcicle. we got to children's national in Washinton D.C, around 10am with the intention of visiting some of the sites but mom was starving so we went ahead to the hospital and got mommy some thing to eat and
 Kiana another popcicle since that was all she could eat until noon. After we ate we went to neurology and waited for about an hour and then we went back for the nurses to check her vitals, find out when she last ate and so on and so forth. then came the hardest part of the whole process...I had to walk her to the room where they would sedate her and start her i.v. After they had her sedated i had to leave and wait and wait for what seemed like forever. I was finally able to go back to her at around 3:30 after she was done with the MRI were i fell asleep waiting for her to wake up. She woke up around 4:30 it took about 2 more hours for me to be able to get her to drank water or apple juice so that the nurse could take out her i.v and we could go home. so after that was all said and done we had to wait almost a month before we got the results for the MRI and basicly it said that her brain is smaller than it should be, the corpus collusum is smaller than it should be, some of her brain cells went to the wrong part of her brain and she has a hypothamic lesion, there were also a few other things but i can't remember them all right now. Kiana has another Neurology appt July 9th so that the doctor can explain exactly what all that means for her future.
        Kiana is also playing T-ball and it's quite intertaining to watch. She likes hitting the ball but doesn't like to run the bases in the order that she's supposed to, and she doesn't particulary like to play on the feild. Kiana has made so much progress in her ISLE(intense structured learning environment) class and next year she will be attending a special education pre-k at either patuxent elementary or sunderland elementary, both of which are about 20/30 mins away from where we live. Kiana also loves to climb on everything, no matter what it might be or if she might get herself hurt. she is such a great girl and is such a joy to have around most of the time.

Doc appts

I'm starting to think that our lives revolve around Kiana's medical appointments. In the last two months we've seen pediatricines, pedatric neurologist, and pediatric opthamologist, none of which are less than about 45 mins away. We still need to make her an appointment with developmental pediatrics and get her scheduled for her MRI. Kiana's Pediatrician also wanted her to get her blood drawn to check her sugar levels and some other things that i can't remember at the moment. Other than all the doctor appointments. She is doing great.