Tuesday, May 8, 2012

to potty train or not to potty train that is the question

Actually it's not much of a question at all. i know that she needs to be potty trained, but we have brand new carpet in the trailer we're renting and not really too keen on having her pee all over the floor....I also don't particularly like having her potty in the middle of the living room either. we are working on it though and she does really well at school but they have the time and patients to take her to the potty every 30 mins.

Tuesday, May 1, 2012

finally an update on my lil monkey



ok, so i know a lot of you have been wondering what's been going on with Kiana. The 26 of march Kiana went in for her 1st MRI. we left here after we took Aelita to school at 8:40am and stopped at k-mart to get her some things to do while we waited as well as a popcicle and then stopped at walmart to get some jello and another popcicle. we got to children's national in Washinton D.C, around 10am with the intention of visiting some of the sites but mom was starving so we went ahead to the hospital and got mommy some thing to eat and
 Kiana another popcicle since that was all she could eat until noon. After we ate we went to neurology and waited for about an hour and then we went back for the nurses to check her vitals, find out when she last ate and so on and so forth. then came the hardest part of the whole process...I had to walk her to the room where they would sedate her and start her i.v. After they had her sedated i had to leave and wait and wait for what seemed like forever. I was finally able to go back to her at around 3:30 after she was done with the MRI were i fell asleep waiting for her to wake up. She woke up around 4:30 it took about 2 more hours for me to be able to get her to drank water or apple juice so that the nurse could take out her i.v and we could go home. so after that was all said and done we had to wait almost a month before we got the results for the MRI and basicly it said that her brain is smaller than it should be, the corpus collusum is smaller than it should be, some of her brain cells went to the wrong part of her brain and she has a hypothamic lesion, there were also a few other things but i can't remember them all right now. Kiana has another Neurology appt July 9th so that the doctor can explain exactly what all that means for her future.
        Kiana is also playing T-ball and it's quite intertaining to watch. She likes hitting the ball but doesn't like to run the bases in the order that she's supposed to, and she doesn't particulary like to play on the feild. Kiana has made so much progress in her ISLE(intense structured learning environment) class and next year she will be attending a special education pre-k at either patuxent elementary or sunderland elementary, both of which are about 20/30 mins away from where we live. Kiana also loves to climb on everything, no matter what it might be or if she might get herself hurt. she is such a great girl and is such a joy to have around most of the time.


Sunday, February 26, 2012

Doc appts

I'm starting to think that our lives revolve around Kiana's medical appointments. In the last two months we've seen pediatricines, pedatric neurologist, and pediatric opthamologist, none of which are less than about 45 mins away. We still need to make her an appointment with developmental pediatrics and get her scheduled for her MRI. Kiana's Pediatrician also wanted her to get her blood drawn to check her sugar levels and some other things that i can't remember at the moment. Other than all the doctor appointments. She is doing great.

Monday, February 13, 2012

chewbaca

Kiana is constently chewing on everything and anything . She's four years old now and she still mouths everything. She's such a chewer that she has chewed the tips off of about 30 pacifiers at this point, so now i've gotten her some teeting rings that seem to be holding up to her so far. Kiana loves school and riding the bus. she still has her extream temper and would rather play by herself or be with mommy all day.

Wednesday, November 30, 2011

Monkeys quick update

Kiana is doing ok. She is still a little behing in her language and some other areas but considering she's doing really well. She seems to enjoy torchering her sister and every one else around. She loves her dog and is always giving her hugs. This coming year we have appointments with both a Ped. Neurologist and opthomlogist. I'm also trying to set up an appointment with a cardiologist to make sure her heart murmur is not serious. Kiana still loves her trains and cars as well as anything else that has wheels that make it go.

Wednesday, October 26, 2011

Tia-Kiana's service dog

I know it's been over a month since i've last blogged about either of the girls.
Kiana is doing great and is loving school and her teachers love her. This past week we decided to get her a dog to train as a service dog for her to help with her independence and not wanting to be held all the time in large groups of people. Unfortunitly we've won't get to pick up Tia until monday so the only time that Kiana gets to see her pup is on days that we drive the 45 mins up to the animal shelter so that Kiana and Tia can Play together.

This is Kiana with Tia at the animal shelter where we got Tia. This is one of the only dogs that she isn't completely terrified of and both of them are so cute together.Kiana is very excited about her puppy and talks about her all the time.







Thursday, September 22, 2011

Nap time?

I know I'm horrible at updating anyway, the other day I put kiana down for a nap and forgot to turn on the baby monitor so I could hear what she was really doing. Well while little miss monkey trouble was supposed to be napping she took her sisters baby Pictures off the wall and took a Part the frame luckily she didn't break the glass on this frame but then she took apart the frame that had her class picture in it and took it apart and shattered the glass all Over her bed and her side of our room. Luckily she only got a small cut on the top Of her foot during this little escapade and hasn't messed with the pictures since(so far anyways) on another note she is doing really well in school and loves riding the bus to and from school.